News from NATE! – August 24, 2017

NATE is excited to report that the FHIR development community has now turned its attention to enabling consumer mediated exchange!

The Connectathon at the HL7 31st Annual Plenary & Working Group Meeting in September 2017 will include a brand new track – Consumer Centered Data Exchange. Leveraging the work of related pilots and prototypes, the HL7 FHIR Consumer Centered Data Exchange Track is the first of its kind and the only one to be focused on three different consumer-related use cases:

  • Consumer Access – Data held by a Source EMR is transferred to a Consumer Controlled App (CCA)
  • Consumer Initiated Exchange – The actions of a consumer result in the transfer of data from a Source EMR to a Target EMR (via consent or otherwise exchanged at the direction of the consumer)
  • Consumer Directed Exchange – Data held by a CCA is transferred to a Target EMR

Participants will utilize FHIR-based resources and related methods to examine how existing specifications support these consumer centered approaches and identify gaps in the specifications that may need to be addressed in the future.

Grahame Grieve, NATE and the Michigan Health Information Network Shared Services (MiHIN), working with nine other participating organizations representing both CCAs and EMRs, have been collaborating to prepare for this Connectathon.

Organizations interested in joining this exciting new development effort should sign up on the NATE website to receive notification of future activities.

Designed for easy implementation, HL7’s Fast Health Interoperability Resources (FHIR®) standard combines the best of earlier HL7 standards with the latest web technologies for health interoperability that’s astonishingly quick and cost-effective to develop. HL7 and FHIR are registered trademarks of Health Level Seven International, registered in the U.S. Patent and Trademark Office.

Medfusion is redefining healthcare IT by centering on the information needs of the patient. The company’s technology breaks down communications barriers between patients and providers while driving revenue and efficiencies for providers. Medfusion’s comprehensive Patient Experience solutions include an industry-leading EMR-agnostic portal that drives patient engagement, a flexible patient self-scheduling solution, a robust portfolio of healthcare APIs and Medfusion Plus – a mobile app which aggregates medical records so patients can access their health information with ease.
Humetrix offers a suite of mhealth platforms to consumers, enterprises, and government healthcare organizations around the world. These mobile platforms empower consumers to manage their healthcare: iBlueButton for mobile-based health record access and exchange; Tensio for chronic condition management; and the multi-language SOS QR for personal safety and emergency care for use worldwide.


Over the coming months, the Office of the National Coordinator for Health Information Technology (ONC) will host a series of meetings and webinars to inform their work related to implementation of the 21st Century Cures Act trusted exchange framework and common agreement provisions. ONC has called for a 30-day public comment period to receive comments on the trusted exchange framework and common agreement provisions in Section 4003 of the Cures Act—including comments specifying considerations, concerns, and success stories for the exchange of health data across networks. We encourage you to submit feedback on this important topic.

NATE was one of eight organizations featured at the July 24, 2017 trusted exchange framework kickoff meeting. Materials from that meeting can be found here. More about NATE’s trust framework can be found here.

The public comment period for the Trusted Exchange Framework and Common Agreement will end at 11:59pm EDT on August 25, 2017.

Comment Areas

Comment Area 1:


Adhere to industry and federally recognized technical standards, policies, best practices, and procedures.
Comment Area 2:


Conduct all exchange openly and transparently.
Comment Area 3:

Cooperation and Non-Discrimination

Collaborate with stakeholders across the continuum of care to exchange electronic health information, even when a stakeholder may be a business competitor.
Comment Area 4:

Security and Patient Safety

Exchange electronic health information securely and in a manner that promotes patient safety and ensures data integrity.
Comment Area 5:


Ensure that patients and their caregivers have easy access to their electronic health information.
Comment Area 6:

Data-Driven Choice

Exchange multiple records at one time to enable identification and trending of data to lower the cost of care, improve the health of the population, and enable consumer choice.
General Comments Stakeholders may submit additional comments in this section that do not fit in the above categories. Alternatively, commenters may submit their comments in their entirety in this category if they choose. Note that while use of the above comment areas is encouraged, it is not required.

Submit a Comment

Showcase Webinar:
Building Patient-Centered Care Coordination Data Systems

Date: Wednesday, August 30, 2017
Time: 2:00-3:00pm ET

This project showcase webinar, hosted by All In: Data for Community Health, will feature presentations from data sharing projects in two communities developing systems that integrate data from sectors such as medical, behavioral, and social services to improve care coordination for special needs populations.

Presenters will share strategies for developing technical platforms that enable care teams, patients and caregivers to access information that helps them better coordinate services and proactively respond to end-user needs. The program will include opening remarks from NATE CEO Aaron Seib, who serves on the National Advisory Board for Data Across Sectors for Health (DASH).


The Missing Link: Patient Responsibility for Health Records

“Sitting on the exam table before a routine procedure, I listened as the nurse reviewed my medical information. She checked my name, address, and birthday. All was well until she said “..and you are allergic to Wellbutrin, Toradol, Darvon and sulfa.” My brain sprang to attention as she continued reading that I had shoulder repair and coronary bypass procedures, that my weight was down 50 kilograms and that my father was alive. It was very detailed.

It was also all very wrong. I have no medication allergies, nor have I had any of the named surgeries. My weight hasn’t changed. And my father passed away in the 1980s…” Read More…

The Patient Data Access Debate Is About Culture, Not Technology

“The fight about a patient’s ability to access his or her digital health data is often fought privately and individually, waged over the phone or at the counter of hospital’s records department. When it does become public, it’s often on a small scale – a social media conversation, one session at a healthcare conference, the occasional local TV station’s “investigative” segment.

That changed this week…” Read More…

Transparency in Health Care: A Priority Roadmap for Consumer Engagement

“Health economists have argued for years that one driver of high health care costs is that the health care market is skewed by information asymmetries. Most people lack the information that they need to make sound decisions, whether about undergoing treatment, or about what constitutes an appropriate price or level of quality for a medical intervention. Relatively few are even aware that their choice of health plan, physician, or treatment can lead to very different cost and quality outcomes. As a result, the discipline that consumers impose on many markets as they exert their own preferences is missing from health care…” Read More…

Learning Health Systems Consensus Action Plan

I.) Promote and Disseminate the Transformative Vision and Value

II.) Define and Assemble Components to Facilitate Implementation

III.) Cultivate the Organizational Culture and Ecosystem to Drive Adoption

IV.) Engage All Stakeholders, Especially Individuals and Consumers

V.) Formalize Best Practices

VI.) Fund and Sustain the Movement

Read More…

Many Lessons Still Need to be Learned Regarding Patient Access to Health Care Information

“The Office of the National Coordinator for Health Information Technology recently released a report (the Report) detailing user experience research on patient access to health data. The Report sought to examine the experiences of 17 individuals and processes of 50 health systems, with commentary from four medical record fulfillment administrators, to determine how the medical record request process can be improved for consumers. The Report ultimately concludes that patients and health care providers alike are in need of a well-defined process that is convenient, expedient and transparent…” Read More…

Join the Consumer Directed Exchange Revolution!

NATE members share strategic input and participate in workgroups, advocacy activities, pilot projects and interoperability demonstrations or serve on the NATE Board of Directors. 

Join now to take a leadership role in shaping the future!

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