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 The new Get My Health Data Campaign has three goals: give consumers the information and tools they need to ask for and use their digital health data; identify and promote innovative apps and tools that help consumers securely compile, store and use their health data; and promote a culture in which consumer access to data is the rule, rather than the exception. Consumer demand for their digital health data will position patients as equal partners in care and create fundamental change in the healthcare system. Check out more information and see how you can help at www.getmyhealthdata.org.
The Get My Health Data Campaign is a collaborative effort among leading consumer organizations, healthcare experts, former policy makers and technology organizations working to enhance consumer access to digital health information. NATE is proud to be a Collaborator with the Get My Health Data Campaign.
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DASH Releases Survey to Advance Community-Based Information Sharing Data Across Sectors for Health (DASH) is a new national initiative supported by the Robert Wood Johnson Foundation (RWJF) to foster multi-sector collaborations sharing data and information to improve the health of their communities. NATE’s CEO Aaron Seib has been appointed to the DASH Advisory Board. One of DASH’s first activities is identifying existing collaborations, barriers, opportunities, lessons learned and promising practices within the field. DASH has developed an online survey to document and understand challenges and successes in order to advance multi-sector collaboration and data sharing. Click here to take the survey Your response will inform RWJF and DASH programming and communications in the future. Please complete the online survey by July 10. For more information, email info@DASHconnect.org. The DASH National Coordinating Office (NCO) is led by the Illinois Public Health Institute in partnership with the Michigan Public Health Institute. Please see this description of DASH for more information. |
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September 27-30, 2015
Silver Baron – Deer Valley, Utah
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Sunday, Sept 27 |
Opening Reception |
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Monday, Sept 28 |
NATE / SHIEC Business Meetings Networking / Shopping / Tour of Park City Reception and Dinner
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Tuesday, Sept 29 |
HUG Business Meeting NATE / SHIEC / HUG Joint Plenary
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Wednesday, Sept 30 |
Half Day Technical Workshop
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Space is Limited!
REGISTER NOW
For More Information: trivera@uhin.org or kathychurch@healthlinc.org
Flip the Clinic: Flip the Clinic, a project of the Robert Wood Johnson Foundation, is announcing a collaboration with more than 160,000 clinicians and staff practicing at sites across the United States, who have pledged to inform patients about their right to get digital copies of their medical records. Flip the Clinic will work hand-in-hand with clinicians at these sites to redesign how clinicians respond to patients’ requests for their own records, with the goal of making health-information access, sharing, downloading, and use a more seamless experience for both patients and clinicians. Flip the Clinic is further committing to educate patients about the President’s Precision Medicine Initiative and how to get involved. Collaborators include: 504 Health Net, Allergy and Asthma Care Centers, Almost Family, Austin Diagnostic Clinic, Children’s Integrated Center for Success, Epic, Inova Health, Johns Hopkins Sibley Memorial Hospital, LIVESTRONG Foundation and Cancer Institutes, MU Health Care, National Association for Trusted Exchange, Palo Alto Medical Foundation, text4baby, Trinity Health, and UNC Health Care.
NATE will bring the expertise of its members and community – including nationally recognized domain experts and experienced real world implementers – to assist each Flip Team in selecting the optimal approach to providing consumers with access to their health information, given that Team’s current capabilities and stage on the sharing maturity continuum. NATE’s leadership is committed to supporting Flip the Clinic‘s goals of making health information accessible to consumers, empowering them to make their own decisions about when and with whom their data is shared. NATE’s immediate goal as a supporter of this Flip will be to help reduce the frustration for those consumers and clinicians involved in the project by providing focused recommendations and useful education about the options available to achieve the objectives of Flip the Clinic #55.
ABOUT THE PRECISION MEDICINE INITIATIVE
Far too many diseases do not have a proven means of prevention or effective treatments. We must gain better insights into the biology of these diseases to make a difference for the millions of Americans who suffer from them. Precision medicine is an emerging approach for disease treatment and prevention that takes into account individual variability in genes, environment, and lifestyle for each person. While significant advances in precision medicine have been made for select cancers, the practice is not currently in use for most diseases. Many efforts are underway to help make precision medicine the norm rather than the exception. To accelerate the pace, President Obama unveiled the Precision Medicine Initiative (PMI) — a bold new enterprise to revolutionize medicine and generate the scientific evidence needed to move the concept of precision medicine into every day clinical practice.
Ordering a coffin from Costco? Easy. Getting your health data so you don’t need it? Not so much. Yet.
We Need Your Story: If you’ve tried to get access to your health data, tell us about it: goo.gl/RGHMff #GetMyHealthData #DataIndependenceDay
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NATE’s NBB4C Trust Bundle makes it easier for providers to share health information with their patients so that their patients can do what they want with it.
Copyright © 2015 National Association for Trusted Exchange. All rights reserved.
Contact email: meryt.mcgindley@nate-trust.org
You are receiving this message because you have an interest in health information exchange.